I’m on a blogging break, so I’m featuring some guest bloggers! They will be sharing their stories and experiences with chronic disease, and I’m excited to share them. Today, we have Carole, who blogs at www.navigatingthestorms.com . Not only is Carole a fantastic writer and advocate, but she is a kind soul who is a great… Continue reading Guest Post! Carole’s Chronicles: by Carole @NavigatingtheStorms.com
Next week, my husband and I are going away for a late anniversary trip to the Isle of Wight. That means a road trip down to the coast, staying in a hotel in the New Forest, then a ferry over the next day. We opted to stay in an AirBnB during our stay on the… Continue reading My Holiday Packing List: Disability Edition
Its been a while since I’ve done an update, so here I go! Gastro Consultant At the start of the month, I saw a new gastroenterologist. This was a more specialised clinic, headed by a doctor who knows a lot about motility disorders. The doctor thinks that my dysmotility is also affecting my bowels as… Continue reading An Update- 03/18
The 28th of February is Rare Disease Day. It’s a day designed to raise awareness of lesser known diseases and conditions. This is so important, not only so that the general public is just more aware of what our lives are like, living with our conditions, but so that we can fight for more funding… Continue reading Rare Disease Day: February 28th
I’m sorry I haven’t written for a while! I had my barium test last week, and I planned to write about it afterwards, however I wasn’t well. The test ended up making my stomach flare, and then the next day I had a migraine. This meant that I ended up in hospital the day after… Continue reading My Barium Meal Experience
Today, I finally saw a dietitian. I was originally referred to one by my neurologist because we had discussed my poor diet (thanks gastroparesis!), and the fact that she wanted me to lose weight. Well, it turns out that I have been losing weight on my own (again, thanks gastroparesis), and am considered to be… Continue reading Seeing a Dietitian for Gastroparesis and Weight Management
My last post talked about ways that I cope with chronic migraines so this week, I thought I’d talk about some ways that I cope with my gastroparesis, in honour of Gastroparesis Awareness Month . My gastroparesis makes me constantly nauseated and I vomit and regurgitate a lot. I also get stomach pain and severe… Continue reading Tips and Tricks for Coping with Gastroparesis
My latest bit of art has taken me a lot longer than anticipated! The last few weeks haven’t been the best for me, and so I wasn’t able to work on my painting as much as I had hoped. I also tried working with acrylic paints this time and found it a new challenge. Because… Continue reading Art: Nausea
This has been a very long week! It’s been very fitting that this week kicked off Gastroparesis Awareness Month as my stomach has dominated this week. On Monday, I was due to get for Botox treatment my gastroparesis. Just a couple hours before we were about to leave, I got a phone call saying that… Continue reading A Weekly Update- 30/07-05/08/17
Today, the 1st of August, kicks off Gastroparesis Awareness Month! What is Gastroparesis, and why is it important that we have a month dedicated to its awareness and advocacy? Gastroparesis (GP) is a condition that basically means “paralysed stomach”. People who have it have stomachs that don’t work properly. Instead of being able to squeeze,… Continue reading Gastroparesis Awareness Month!
A Chronic Spoonful 