The 28th of February is Rare Disease Day. It’s a day designed to raise awareness of lesser known diseases and conditions. This is so important, not only so that the general public is just more aware of what our lives are like, living with our conditions, but so that we can fight for more funding… Continue reading Rare Disease Day: February 28th
On Tuesday, I decided to make my husband his favourite cheesecake. It’s a chocolate chip cookie one, with a base of cookie, and more cookie bits baked throughout. Now, I usually bake it in a glass Pyrex dish lined with baking paper. This time, I forgot the paper. I was so tired by the end… Continue reading Swimming Through Brain Fog
Living with chronic disease can be challenging, and very time consuming. It often feels like a full time job just managing it. There are all sorts of aspects that need juggling to ensure that you are keeping on top of your chronic condition. They are important to ensure that you feel the best you can.… Continue reading Managing Chronic Conditions is a Full Time Job!
It’s a new year, and so I, as many people do, am reflecting on the past year. 2017 was a very mixed year for me. Health I spent most of the year with debilitating migraines that limited my mobility. That meant that I spent many days in bed, and have had to use a walker… Continue reading Happy New Year: Reflecting Back on 2017
Today, I finally saw a dietitian. I was originally referred to one by my neurologist because we had discussed my poor diet (thanks gastroparesis!), and the fact that she wanted me to lose weight. Well, it turns out that I have been losing weight on my own (again, thanks gastroparesis), and am considered to be… Continue reading Seeing a Dietitian for Gastroparesis and Weight Management
The last few months, I’ve had a lot of appointments, so I thought I’d do an update for you. Since they found that I have increased thyroid antibodies, I was sent to an endocrinologist. The endocrinologist and I discussed not only the risks and issues surrounding the antibodies (my thyroid numbers are currently in range),… Continue reading An Update- 12/17
Hi all! I’m sorry that I haven’t been able to write in the last few weeks. In October, my husband and I went on a trip to Canada to visit my family and friends. Upon returning, I was hit with extreme fatigue, migraine, and a virus. I’m working through a stomach flare now too, but… Continue reading A Trip Home to Canada