Its been a while since I’ve done an update, so here I go! Gastro Consultant At the start of the month, I saw a new gastroenterologist. This was a more specialised clinic, headed by a doctor who knows a lot about motility disorders. The doctor thinks that my dysmotility is also affecting my bowels as… Continue reading An Update- 03/18
The 28th of February is Rare Disease Day. It’s a day designed to raise awareness of lesser known diseases and conditions. This is so important, not only so that the general public is just more aware of what our lives are like, living with our conditions, but so that we can fight for more funding… Continue reading Rare Disease Day: February 28th
The theme of the last couple of weeks seems to be pain. I have been dealing with extra pain with my neck and arm, and of course my stomach likes to remind me that it’s there too. Then, last week, I woke up with a blinding pain in my back. It goes down into my… Continue reading What a Pain!
TW: pet death I really don’t want to write this post. In fact, in many ways I struggled with whether I should. I am also struggling with whether or not I can. But I’ve decided it’s important. You see, today my family is losing our beloved dog, Mikko. Mikko has gotten old, and is no… Continue reading Mikko
Hi all! I’m sorry that I haven’t been able to write in the last few weeks. In October, my husband and I went on a trip to Canada to visit my family and friends. Upon returning, I was hit with extreme fatigue, migraine, and a virus. I’m working through a stomach flare now too, but… Continue reading A Trip Home to Canada
This week I saw a new neurologist. I have been waiting to see a neurologist for many months, after my last appointment went so poorly. I had been referred to the specialist centre at Addenbrookes Hospital in Cambridge, because I was a “complicated” patient. The neurologist was nice. I had over-prepared by typing up a… Continue reading A New Neurologist
This has been quite a busy week for me! I woke up Sunday night with a big migraine, so that meant I was out of commission on Monday. On Tuesday, I still felt miserable, but I had to somehow drag myself out of bed to shower so that I could attend my endocrinologist appointment. The… Continue reading A Weekly Update- 17-23/09/17