Gastroparesis · General chronic conditions · Migraine · Thyroid · Updates

An Update- 12/17

The last few months, I’ve had a lot of appointments, so I thought I’d do an update for you.

Since they found that I have increased thyroid antibodies, I was sent to an endocrinologist.

The endocrinologist and I discussed not only the risks and issues surrounding the antibodies (my thyroid numbers are currently in range), but the fact that I have had severe fatigue for the last several months. That, along with a few other things made her want to test my adrenal gland.

She told me that I was the first patient ever she was testing for both high and low adrenal function.

To test for high function, I took a tablet at night, and then had a blood test in the morning.

To test for low function, I had to get a blood test, then have an injection. Thirty minutes later, another blood test, then sixty minutes later, I was supposed to get another blood test done, but my veins failed and the nurse could not get blood from me. This is a huge problem for me. My veins are awful, and eventually she told me it would be unethical to continue. She said that they could assess if I was positive from the thirty minute test anyway, so I shouldn’t have to repeat the test.

It turned out that both tests were negative, which was a huge relief.

I did, however, have a couple deficiencies that help explain why I am so fatigued.

One of them, Vitamin D, might be explained by the fact that I take two anti convulsion meds, which can make it hard for your body to absorb it.

So, I’m taking supplements and will retest my thyroid levels, and a few other things in six months when I see my endocrinologist again.

I also saw my gastroenterologist recently. She explained that my botox injection I was supposed to get was cancelled because the local NHS Trust has decided it doesn’t count as a trusted treatment, despite the fact that the NHS lists it as a treatment on its website.

My consultant explained it was the result of the Trust cutting treatments due to the government’s underfunding. She suggested we could write to our MP, which I may do.

She appealed twice and was denied, so our next step is for her to refer me to another hospital in another Trust. If I can be seen elsewhere, I might get specialist treatment, and the treatment I need.

She’s referred me to the hospital I had my gastric emptying study at, and I now am waiting to hear if I’m allowed to be seen there.

Fingers crossed!

In the meantime, my new med regime for my migraines have been helping. I went two whole weeks without a migraine before my last one! That is a major record for me. When I get a migraine, it’s also only lasting two to three days instead of five or six. That’s a huge difference, and a huge relief.

My physiotherapy is starting to make a difference as well with my tennis elbow. I’m starting to get an improvement with it after months of pain. So, Yay for more good news!

This week I see a dietitian to see if they can help me with getting a better diet sorted. I’m struggling with what foods I can eat/keep down, and I’m hoping they have some ideas.

Hopefully, the supplements will help,  I’ll get approval to go to the new hospital, and I’ll have good news to tell you on my next update!

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6 thoughts on “An Update- 12/17

  1. Cuts in the NHS are causing a lot of problems, and I’m sorry you’ve found that with your treatment recently. I do hope the other hospital will see you and hopefully provide the treatment, but I also think it’s something worth writing to your MP about as suggested. Good news on the new meds for migraines though, very positive to hear in addition to the physio!

    I do hope the dietician can offer some advice when you see them this week, I’ll keep my fingers crossed for you.

    As for the Vit D, I was tested for this last year (strange how I don’t think it had ever been tested before!) and was told my levels were almost non-existent and was put on a high dose prescription for a while; I now have to take daily supplements for life, so I’m glad they’ve picked up on your deficiency now too as it’s important to find these things and get them treated when they’re relatively easy to manage in comparison to the other problems we face like with thyroids and such!

    Caz xx

    Liked by 1 person

    1. Thank you. 🙂

      It is maddening that the cuts are not only preventing myself, and others from accessing treatment, but wasting more money by sending us elsewhere. I’m so hopeful I get approved.

      It is nice to have some positives though!

      I’m on a high Vit D now, and Folic Acid too. It’s good they can sort that out easily, as you say. Sorry you have to take it too, but it’s good they picked it up!

      Erin ☺

      Liked by 1 person

  2. I think alot of these disease it make processing Vitamin D and other elements dysregulated and unreliable. My 25D is almost non-existant too, but I have read that pathogens that may be present in a number of diseases basically soak it up and that’s why we aren’t showing the proper amounts in bloodwork.
    Sorry to hear about your other treatment being cut. I hope one of your other doctors is covered by another pot of money so that you won’t have to miss it.

    Liked by 1 person

    1. Thank you. I’m hopeful things work out!

      Vit D deficiencies definitely does seem to be a common issue. That is interesting about the pathogens.

      I’m also on folic acid now too, and have found several symptoms have been reduced, which has been great. It’s amazing how these things can affect us.

      Like

  3. Good luck.
    I ran across your 30 blog (I’m getting ready to turn 30 next month and searched to see how many other posts were written about that milestone)
    I’m in the US so I don’t know much about your medical system.
    I have Hashimoto’s and had my adrenals tested (had symptoms of Cushings)- negative for any of those issues. Had a vitamin D deficiency but cured it by laying in a tanning bed for about 5 minutes 3 times over the course of 3 weeks. )
    I don’t have gastritis, but thanks to a few different medical conditions, I have had it recommended to me to stay away from sugar, bad carbs, white pretty much anything, gluten, lactose and a bunch of other foods- without professional help, it’s overwhelming.

    Liked by 1 person

    1. Thank you!
      Happy early birthday! 🎁
      Sorry to hear that you have had a rough go of it with several issues too, and not a lot of help from the medical world. That is very hard.
      My doctors told me to go outside in the sun (whenever it’s actually out here lol) whenever I can, although they’ve put me on a prescription dose of Vit D. I’m also on some other supplements as well.
      I hope your diet helps you out. ❤

      Like

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