The last few months, I’ve had a lot of appointments, so I thought I’d do an update for you.
Since they found that I have increased thyroid antibodies, I was sent to an endocrinologist.
The endocrinologist and I discussed not only the risks and issues surrounding the antibodies (my thyroid numbers are currently in range), but the fact that I have had severe fatigue for the last several months. That, along with a few other things made her want to test my adrenal gland.
She told me that I was the first patient ever she was testing for both high and low adrenal function.
To test for high function, I took a tablet at night, and then had a blood test in the morning.
To test for low function, I had to get a blood test, then have an injection. Thirty minutes later, another blood test, then sixty minutes later, I was supposed to get another blood test done, but my veins failed and the nurse could not get blood from me. This is a huge problem for me. My veins are awful, and eventually she told me it would be unethical to continue. She said that they could assess if I was positive from the thirty minute test anyway, so I shouldn’t have to repeat the test.
It turned out that both tests were negative, which was a huge relief.
I did, however, have a couple deficiencies that help explain why I am so fatigued.
One of them, Vitamin D, might be explained by the fact that I take two anti convulsion meds, which can make it hard for your body to absorb it.
So, I’m taking supplements and will retest my thyroid levels, and a few other things in six months when I see my endocrinologist again.
I also saw my gastroenterologist recently. She explained that my botox injection I was supposed to get was cancelled because the local NHS Trust has decided it doesn’t count as a trusted treatment, despite the fact that the NHS lists it as a treatment on its website.
My consultant explained it was the result of the Trust cutting treatments due to the government’s underfunding. She suggested we could write to our MP, which I may do.
She appealed twice and was denied, so our next step is for her to refer me to another hospital in another Trust. If I can be seen elsewhere, I might get specialist treatment, and the treatment I need.
She’s referred me to the hospital I had my gastric emptying study at, and I now am waiting to hear if I’m allowed to be seen there.
In the meantime, my new med regime for my migraines have been helping. I went two whole weeks without a migraine before my last one! That is a major record for me. When I get a migraine, it’s also only lasting two to three days instead of five or six. That’s a huge difference, and a huge relief.
My physiotherapy is starting to make a difference as well with my tennis elbow. I’m starting to get an improvement with it after months of pain. So, Yay for more good news!
This week I see a dietitian to see if they can help me with getting a better diet sorted. I’m struggling with what foods I can eat/keep down, and I’m hoping they have some ideas.
Hopefully, the supplements will help, I’ll get approval to go to the new hospital, and I’ll have good news to tell you on my next update!