This has been a very long week!
It’s been very fitting that this week kicked off Gastroparesis Awareness Month as my stomach has dominated this week.
On Monday, I was due to get for Botox treatment my gastroparesis. Just a couple hours before we were about to leave, I got a phone call saying that it was cancelled. The funding wasn’t approved and my doctor couldn’t get the Botox for me. She is apparently fighting the decision, however that means I don’t know whether or not I’ll be able to get the treatment. If it is approved, it will likely be several months still before I can get it booked in again.
Leading up to Monday, I had been having a hard time with my stomach. Afterwards, it got worse and Wednesday I began to get quite dehydrated.
Now, I already had a GP appointment booked Wednesday, so I went to that in the morning.
I met a new GP, as my old one has retired. He seemed quite nice and knowledgeable. We went over my list of medications and diagnoses. I also discussed my new thyroid diagnosis with him. He felt that I shouldn’t need treatment at this time, but I should be monitored by an endocrinologist. I am quite happy with this plan right now, so that put my mind at ease regarding that.
I talked to him about my dehydration and he prescribed me the meds I take for my stomach when things get bad. He did tell me that I should probably go to hospital to get fluids and he recommended that I go to the hospital in our county’s trust, rather than the hospital that is actually closer, but outside of the trust because it is not in our county. If we go to the hospital within the trust, he explained, my gastro consultant should get access to the information that I was in hospital. Otherwise, she won’t (which is why she hadn’t known about my hospital visits before).
So, armed with this knowledge, after my husband got off work, we headed up to the hospital that was further away, but in our trust.
We got there just before 7pm and waited. I got my bloods taken, and an IV in. I was told I had to see a doctor to get my fluids. Well… We waited and waited. It wasn’t until about 3:20am that I got medication and fluids. We didn’t leave the hospital until about 5am.
To wait that long to simply get fluids was exhausting and, quite frankly… Silly. It was a combination of sheer busyness, lack of staff, and staff not doing what they should be doing.
Despite the long night, my husband and I were able to have a good giggle when we overhead a doctor tell a patient to gather up all his stuff because he was, “going over to the other side”. Bad choice of words to say to a patient in a hospital, Doc! 😂