When you say that you are tired, what do you mean?
Do you mean that you didn’t sleep well, so you might feel a bit slower this morning?
Or that your eyes are weary because you’ve been working hard and they need a rest?
You might be run down, be struggling to cope, and genuinely need a break.
Everyone can understand what it means to be tired.
But what many people don’t understand is what people with chronic conditions mean when they say that they are tired.
Tired often doesn’t mean simply “tired”. It means fatigued.
Fatigue moves past tiredness, not just because of how extreme it is (and trust me… It can be extreme), but because it isn’t solved by a nap, or rest. Sleep doesn’t cure it, nor does it always help.
I rest a lot simply because if I don’t, I get more migraines and I feel worse overall. My other symptoms flare and my fatigue is unbearable. My naps don’t make my fatigue go away, but without them, I become so overwhelmingly exhausted, it can be difficult to get out of bed some days.
And no. It’s not possible to push through it. It’s just not. I’ve tried. And if you know me and know how stubborn I can be, you know that if I could push through this, I would.
Fatigue also includes fun things like muscle aches. Think about a time when you were really, really tired. Your shoulders might have ached a bit, and you needed a good stretch because your muscles might have tensed up more than normal.
Well, when fatigue hits, the same thing happens, but worse. Plus, if you have any sort of pain disorder, it can flare up, causing worse pain.
I have a herniated disc in my cervical spine, as well as a deformity. This causes constant muscle and nerve pain in my neck, shoulders, and left arm. When I have more severe fatigue, this always gets much worse and I have more pain.
If you suffer from pain issues, you know what I’m going to say next: more pain leads to less sleep, which leads to more fatigue, and more pain, and on, and on.
My gastroparesis also has caused malnutrition, which means my body isn’t functioning properly. This causes even more fatigue.
So, you try and maintain some sort of balance in your life. Fatigue will threaten to takeover and consume every aspect of your life, until you are just a lump in the bed… but fight and remember that you have fatigue but are not fatigue. You are still you.
Oh how true is this post. Tired…from staying out late at night…Tired….so not the same…I have tried to explain to people that its like you have hit a brick wall and you just can not go any further…plus when you hit that brick wall…your whole body feels like its been smashed…Not sure if they understood….i didn’t ask
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It’s hard to describe, isn’t it? xx
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sure is….it used to annoy me when I was working and I was so tired that I fell asleep at my desk. You get the “have you been burning the candle at both ends” so annoying…
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Ah yes… I get that. It’s like, you have zero control over fatigue. It is just this monster that lives with you.
I really want to work again but one of my concerns is fatigue. I know I just don’t have it in me to work full time, unless I can do it from home flex hours. Otherwise, I can only think about part time roles.
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I do understand the wanting to work..I fought with my dr for a couple of years before i finally quit…got disability straight away no waiting…went in for a working appointment, and the girl couldn’t understand why I was even there. They had put me down as chronic and if i wanted to do volunteer work I could…I said i help manage a few fb groups for thyroid etc and she said well thats enough then….
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That’s great that you got disability so quickly! That must have been a relief.
I’m not allowed benefits because of my visa (I live abroad) but my husband provides for us.
I think volunteering, writing, etc. is all important. I’m glad you are able to do that still. 🙂
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I was very lucky re the disability pension…others take ages…My dr said every T had to be crossed and every I dotted….
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Just wanted to say your blog is really good…I wish you didn’t have all this happening..xx
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Thank you very much! I wish I didn’t either, but that’s life. I hope that my words help inform others who don’t have any chronic conditions, and encourage those who do.
🙂
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You are welcome…xx Yes your words are encouraging xx
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Reblogged this on Stone in the Road.
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